Part 2b: Your pain

Part 2b is about the different types of pain you experience and the methods used to relieve this. With the help of your entries, we can better understand how much and which types of pain patients with FSHD have.

Level of pain

Please describe the greatest level of pain you have experienced in the last seven days because of your FSHD in the following locations.

Persistent pain

The following questions are about any persistent pain you have experienced in the last five years as a result of your FSHD. This is daily pain that can be intermittent or constant that you experience for at least 12 weeks within a year (e.g. three periods of daily pain that last for four weeks or more).

Medications

Have you used any over the counter or prescription medications for more than one week in the last five years to help deal with persistent pain?

If you have used more than one medication, please click on the button “Add another medication” to add a new form box.

Alternative therapies/treatments

Have you used any alternative therapies/treatments for more than one week in the last five years to help deal with persistent pain?

If you have used more than one type of therapy, please click on the button “Add another alternative therapy” to add a new form box.

Physiotherapy

The following questions discuss any physiotherapy you have received to help deal with pain you experience as a result of your FSHD. This does not include any therapy you have received as part of rehabilitation for other illness or injury.

Localised pain

The following questions ask about any severe localised muscle pain you have experienced as a result of your FSHD. That is a strong pain that was felt in one distinct area for at least one day but less than one month.

Occasions of localised pain

We would like to know about all the occasions you have experienced pain like this in the last 5 years. Click on the button “Add another occasion” to add another form box.