Leaflets
Please help us to raise awareness of the registry by sharing information with anyone affected by or interested in FSHD. You are welcome to download, share and print these resources yourself, or we can also provide printed copies for distribution at clinics – please request these here.
Our information leaflet helps to explain what the UK FSHD Patient Registry is about and the benefits of joining; The leaflet is available here:
We also have a smaller Registry Postcard containing a QR code and a website link to request more information or support with registration. The postcard is available here:
Please see the JWMDRC Registries Team homepage to view, download and request our general and combined registry resources.